Tuesday, October 5, 2010
New blog!
I am moving my blog to http://foodallergythoughts.blogspot.com/--please come and follow me there for more great food allergy articles and information.
Wednesday, September 29, 2010
Food as a Weapon?
Food as a weapon? Sounds a little far-fetched, depending on your experience. But for those of us who have swelled up at the touch of a nut or other allergen, or seen someone close to us do the same, it is easy to imagine. Unfortunately, it is also easy for school age children to imagine. A recent study published in the Annals of Allergy, Asthma & Immunology reports on the frequency of bullying targeting children with food allergies. According to the survey data, approximately 25% reported negative interactions with other children focused around food allergies. And of those, 1/3 experienced physical bullying regarding their food allergies.
Although we weren't contacted for this study, Sophie falls in that last third. Thankfully, she has only been physically targeted once, but once is certainly more than enough when it comes to this kind of thing.
When Sophie was in 1st grade, a girl she didn't know sat down next to her at lunch. Sophie's food allergies came up in conversation, and the girl held up a cookie from her own lunch, asking, "Can you eat this cookie?" When Sophie said, "No, it probably has wheat and eggs in it," the other girl put the cookie down right next to Sophie's food, getting crumbs all over the place. Sophie was shaken by the incident. She decided she was finished with her lunch anyway and hurried outside to recess.
Thankfully, that afternoon she spoke to me about the incident and I had the opportunity to speak with her teacher. Her teacher was furious and quickly took steps to educate the child about the seriousness of the action.
In this case, we don't really know if the "bully" understood the potential damage she could inflict. Sophie interpreted her tone as negative, but without another witness we couldn't say for sure. But in other cases, intent seems much more clear. There have now been several cases in the United States in which the bully has actually been arrested and charged with a crime for food allergy related bullying.
On the surface, bullying is bullying is bullying. But the fact that many adults, including those in a position of authority at schools, underestimate the severity of food allergies increases the risk for the targets of food allergy bullying. Threatening a child with a food he or she is allergic to is tantamount to threatening that child with a loaded gun. Both can kill, and equally quickly.
Although we weren't contacted for this study, Sophie falls in that last third. Thankfully, she has only been physically targeted once, but once is certainly more than enough when it comes to this kind of thing.
When Sophie was in 1st grade, a girl she didn't know sat down next to her at lunch. Sophie's food allergies came up in conversation, and the girl held up a cookie from her own lunch, asking, "Can you eat this cookie?" When Sophie said, "No, it probably has wheat and eggs in it," the other girl put the cookie down right next to Sophie's food, getting crumbs all over the place. Sophie was shaken by the incident. She decided she was finished with her lunch anyway and hurried outside to recess.
Thankfully, that afternoon she spoke to me about the incident and I had the opportunity to speak with her teacher. Her teacher was furious and quickly took steps to educate the child about the seriousness of the action.
In this case, we don't really know if the "bully" understood the potential damage she could inflict. Sophie interpreted her tone as negative, but without another witness we couldn't say for sure. But in other cases, intent seems much more clear. There have now been several cases in the United States in which the bully has actually been arrested and charged with a crime for food allergy related bullying.
On the surface, bullying is bullying is bullying. But the fact that many adults, including those in a position of authority at schools, underestimate the severity of food allergies increases the risk for the targets of food allergy bullying. Threatening a child with a food he or she is allergic to is tantamount to threatening that child with a loaded gun. Both can kill, and equally quickly.
Thursday, September 16, 2010
Decisions, decisions...
How do we make decisions that affect our children, especially with food allergies? When trying to negotiate their schooling, classrooms, socials events, friends, how do you decide when to speak up and when to let things take their own course? As I look back over my decisions as a parent, I think there are a couple of major things that I considered (or wish I had!) to aid me in decision making.
1. Health/Endangerment: is this situation putting my child in the way of physical harm? Is my child likely to end up in the hospital if this situation continues?
2. Emotional/Spiritual Health: is this situation likely to cause my child emotional damage? Will this situation adversely affect my child's spiritual growth?
3. Discomfort: will my child be extremely uncomfortable in this situation?
Balanced against possible benefits, these questions can guide us as parents as we try to navigate things like:
Should I send my child to spend an afternoon with the aunt who doesn't believe in food allergies?
Do I need to stay with my 7 year old at a classmates birthday party?
Should I become homeroom mom and coordinate the daily snacks again this year?
Does it makes sense to take my child to the doctor on day one of her fever, or should I wait?
Should I let the doctor give my child the newest vaccine, or this year's flu shot?
After considering the options, benefits, and drawbacks, I have found it is often helpful to ask one more question:
Who does this decision benefit, and am I okay with that?
Looking back, I realize that I sometimes have made decisions about caring for my children that were for my benefit, or a decision about one child that actually benefits another child more. While it is important to do what's best for the whole family, I also like to be aware of why I have taken certain actions. I believe motives can be as important as actions, so I try to be sure that my motives are in line with my values and goals as much as possible.
As a parent of a child with food allergies, I find that my decisions inherently have more potential damage than they did before Sophie was born. If you have found that to be the case as well, I hope you will benefit from my decision guidelines.
1. Health/Endangerment: is this situation putting my child in the way of physical harm? Is my child likely to end up in the hospital if this situation continues?
2. Emotional/Spiritual Health: is this situation likely to cause my child emotional damage? Will this situation adversely affect my child's spiritual growth?
3. Discomfort: will my child be extremely uncomfortable in this situation?
Balanced against possible benefits, these questions can guide us as parents as we try to navigate things like:
Should I send my child to spend an afternoon with the aunt who doesn't believe in food allergies?
Do I need to stay with my 7 year old at a classmates birthday party?
Should I become homeroom mom and coordinate the daily snacks again this year?
Does it makes sense to take my child to the doctor on day one of her fever, or should I wait?
Should I let the doctor give my child the newest vaccine, or this year's flu shot?
After considering the options, benefits, and drawbacks, I have found it is often helpful to ask one more question:
Who does this decision benefit, and am I okay with that?
Looking back, I realize that I sometimes have made decisions about caring for my children that were for my benefit, or a decision about one child that actually benefits another child more. While it is important to do what's best for the whole family, I also like to be aware of why I have taken certain actions. I believe motives can be as important as actions, so I try to be sure that my motives are in line with my values and goals as much as possible.
As a parent of a child with food allergies, I find that my decisions inherently have more potential damage than they did before Sophie was born. If you have found that to be the case as well, I hope you will benefit from my decision guidelines.
Wednesday, September 1, 2010
Food Bans
(Please note that I realize that my views do not cover every possible scenario, and I also realize that younger children may have different needs.)
I have thought a lot about food bans in schools, since Sophie has food allergies and since our school has considered a food ban. I am personally not in favor of food bans. I have three basic reasons to oppose them. First, a food ban is unnecessary for most people with even severe food allergies. Second, a food ban creates a false sense of security for those who do have an extremely sensitive allergy. Third, other measures would be more effective in preventing classroom contamination than a food ban.
Food bans--completely eliminating a particular food or food group--are unnecessary for most people with food allergies. Very few people over the age of 4 will have a reaction solely based on the presence of their food allergen. There are many anecdotes about reacting when a sibling ate a peanut butter cup or other similar things, but in reality most children will not react unless they come into direct contact with the allergen. In the rare instance that a child does struggle with allergies after eating with other children, special arrangements might be made for that child to eat in a separate area.
In the event that a food is prohibited from a school (or other environment), it can create a false sense of safety because, in actuality, it is nearly impossible to monitor or enforce a ban like this. While children may move away from peanut butter sandwiches, they will continue to bring other items containing peanuts, such as granola bars and cookies. A situation could easily arise where an allergic child makes an assumption of safety about foods that are contaminated. Additionally, banning a single food, like peanuts, will not solve food allergy problems for most schools. Most children have more than one food allergy and peanuts are not necessarily their biggest concern. Should we start banning multiple allergens from schools?
There are several alternatives to food bans that should be considered. Schools can designate specific areas for eating, and allow food only in those areas. One model might be that children eat all of their snacks and meals in the lunchroom. For a school with no lunchroom, all food could be consumed at the child's own desk. In both scenarios, the areas would be cleaned immediately after every meal. Schools can also institute hand washing before and after lunch, to prevent contact with allergens on the playground and in other areas of the school. Another possibility is to institute partial bans; based on the allergens affecting each classroom, ban the offending foods for that classroom only.
These alternatives to the whole school peanut ban are easier to implement and enforce, can be customized for the needs of the particular student, are less restrictive to the students in general, and model solutions that are more adaptable to the outside (of elementary school) world. In the long run, I believe that students with food allergies will be safer and better equipped to manage their food allergies if these types of ideas are utilized in place of the more generalized food bans.
I have thought a lot about food bans in schools, since Sophie has food allergies and since our school has considered a food ban. I am personally not in favor of food bans. I have three basic reasons to oppose them. First, a food ban is unnecessary for most people with even severe food allergies. Second, a food ban creates a false sense of security for those who do have an extremely sensitive allergy. Third, other measures would be more effective in preventing classroom contamination than a food ban.
Food bans--completely eliminating a particular food or food group--are unnecessary for most people with food allergies. Very few people over the age of 4 will have a reaction solely based on the presence of their food allergen. There are many anecdotes about reacting when a sibling ate a peanut butter cup or other similar things, but in reality most children will not react unless they come into direct contact with the allergen. In the rare instance that a child does struggle with allergies after eating with other children, special arrangements might be made for that child to eat in a separate area.
In the event that a food is prohibited from a school (or other environment), it can create a false sense of safety because, in actuality, it is nearly impossible to monitor or enforce a ban like this. While children may move away from peanut butter sandwiches, they will continue to bring other items containing peanuts, such as granola bars and cookies. A situation could easily arise where an allergic child makes an assumption of safety about foods that are contaminated. Additionally, banning a single food, like peanuts, will not solve food allergy problems for most schools. Most children have more than one food allergy and peanuts are not necessarily their biggest concern. Should we start banning multiple allergens from schools?
There are several alternatives to food bans that should be considered. Schools can designate specific areas for eating, and allow food only in those areas. One model might be that children eat all of their snacks and meals in the lunchroom. For a school with no lunchroom, all food could be consumed at the child's own desk. In both scenarios, the areas would be cleaned immediately after every meal. Schools can also institute hand washing before and after lunch, to prevent contact with allergens on the playground and in other areas of the school. Another possibility is to institute partial bans; based on the allergens affecting each classroom, ban the offending foods for that classroom only.
These alternatives to the whole school peanut ban are easier to implement and enforce, can be customized for the needs of the particular student, are less restrictive to the students in general, and model solutions that are more adaptable to the outside (of elementary school) world. In the long run, I believe that students with food allergies will be safer and better equipped to manage their food allergies if these types of ideas are utilized in place of the more generalized food bans.
Tuesday, August 24, 2010
Sally
I first met Sally...well, I actually haven't ever met Sally in person. But Sally is one of my online friends. She contacted me shortly after Sophie Safe Cooking was published, because we have a common goal: to LIVE with food allergies.
At the time that Sally and I first "met" she was writing a blog called Aprovechar, in which she discusses the dietary changes she has made over the years, why she made changes, and the benefits she's experienced as a result. She has had other projects over the years as well, but her newest one is a culmination of all of those:
http://tilthforhealth.com/
As you explore Sally's new website, you will find beautiful and inspiring photography (did I mention that she's an artist, too?), stories of lives she's helped to change, and resources to help you change and improve your food world.
Thank you, Sally, for encouraging others, and especially encouraging me, on our continued journey through food!
At the time that Sally and I first "met" she was writing a blog called Aprovechar, in which she discusses the dietary changes she has made over the years, why she made changes, and the benefits she's experienced as a result. She has had other projects over the years as well, but her newest one is a culmination of all of those:
http://tilthforhealth.com/
As you explore Sally's new website, you will find beautiful and inspiring photography (did I mention that she's an artist, too?), stories of lives she's helped to change, and resources to help you change and improve your food world.
Thank you, Sally, for encouraging others, and especially encouraging me, on our continued journey through food!
Friday, August 20, 2010
Bandwagon
Most of the time, I don't really like to get on the bandwagon. I would rather ignore whatever the latest bandwagon is until I have time to research the topic and decide my own opinion. So it is with reluctance that I am getting on the Joel Stein Bandwagon.
Joel Stein? Who's that? Joel Stein is a columnist. He wrote a rather inflammatory column which was published in the Los Angeles Times in January, which opened with this line: "Your kid doesn't have an allergy to nuts. Your kid has a parent who needs to feel special." This was followed with lots more nonsense about food allergies.
Lots of food allergy bloggers and writers were angry. (Surprise, surprise!) But then something sad happened--Joel Stein's little son Laszlo had an allergic reaction after eating mixed nuts. This wasn't your 5-hives-and-an-itchy-mouth type reaction, either. Joel describes it like this, "Laszlo started sneezing, then breaking out in hives, then rubbing his eyes, then crying through welded-shut eyes, then screaming and, finally, vomiting copiously at the entrance of the Childrens Hospital emergency room..." Having seen Sophie like this, its enough to break my heart. And clearly, Joel has learned a little--he wrote a new article in which he explained his new point of view.
Normally, at this point I would still be completely ignoring all of this. After all, what we have here is some guy who doesn't know squat about food allergies and said some stupid things, after which he learned a little about food allergies. Here's the problem: now all those food allergy bloggers who were mad before are writing about karma and nut free schools and 20 other related things, all mean-spirited.
BACK OFF! We need to give this guy some space! He is still learning about food allergies and what that's going to mean for his kid and his life. All of us can look back on our early days and we can see that there is a learning curve with food allergies. I made mistakes; I'm sure you did too. But unless Mr. Stein makes mistakes that endanger his son, it's nobody's business. And even then it's up to his wife and social services and a doctor to sort out, not the public! So let's not worry about whether he's going to exclude nuts from his house. And let's not worry about his son's school and classroom. Let him, his wife, and their doctors manage Laszlo's allergies.
Every kid is different. Their allergies are different. Some kids can sit next to someone eating peanut butter with no problems. Some kids have to leave the house if there is pasta boiling to avoid reactions. Let's allow the Stein family to determine how to manage Laszlo's allergies, just as we were allowed to choose for our own children.
Joel Stein? Who's that? Joel Stein is a columnist. He wrote a rather inflammatory column which was published in the Los Angeles Times in January, which opened with this line: "Your kid doesn't have an allergy to nuts. Your kid has a parent who needs to feel special." This was followed with lots more nonsense about food allergies.
Lots of food allergy bloggers and writers were angry. (Surprise, surprise!) But then something sad happened--Joel Stein's little son Laszlo had an allergic reaction after eating mixed nuts. This wasn't your 5-hives-and-an-itchy-mouth type reaction, either. Joel describes it like this, "Laszlo started sneezing, then breaking out in hives, then rubbing his eyes, then crying through welded-shut eyes, then screaming and, finally, vomiting copiously at the entrance of the Childrens Hospital emergency room..." Having seen Sophie like this, its enough to break my heart. And clearly, Joel has learned a little--he wrote a new article in which he explained his new point of view.
Normally, at this point I would still be completely ignoring all of this. After all, what we have here is some guy who doesn't know squat about food allergies and said some stupid things, after which he learned a little about food allergies. Here's the problem: now all those food allergy bloggers who were mad before are writing about karma and nut free schools and 20 other related things, all mean-spirited.
BACK OFF! We need to give this guy some space! He is still learning about food allergies and what that's going to mean for his kid and his life. All of us can look back on our early days and we can see that there is a learning curve with food allergies. I made mistakes; I'm sure you did too. But unless Mr. Stein makes mistakes that endanger his son, it's nobody's business. And even then it's up to his wife and social services and a doctor to sort out, not the public! So let's not worry about whether he's going to exclude nuts from his house. And let's not worry about his son's school and classroom. Let him, his wife, and their doctors manage Laszlo's allergies.
Every kid is different. Their allergies are different. Some kids can sit next to someone eating peanut butter with no problems. Some kids have to leave the house if there is pasta boiling to avoid reactions. Let's allow the Stein family to determine how to manage Laszlo's allergies, just as we were allowed to choose for our own children.
Tuesday, June 22, 2010
Pecan Reaction 2005
When Sophie was 3 years old, our allergist lifted his ban on certain foods for her. Because of the number and severity of her allergies, he had previously restricted her from having tree nuts, fish and shellfish, even though she had no history of reactions to them. After she turned 3, he felt that this restriction was no longer necessary.
Knowing that pecans are a favorite of basically everyone in our family, my husband and I decided to try pecans first. On an afternoon when we were both home, we gave Sophie one pecan half. She chewed and we she began to swallow, she said, “My mouth is burning!” I immediately gave her a double dose of Benadryl. Within 5 minutes, she had huge welts following her lymph track and she was struggling to breathe. I guessed that we just needed to help her breathing until the Benadryl took effect (usually about 20 minutes). Based on that we decided to administer her inhaler and followed up a few minutes later with a nebulizer treatment.
After a few ups and downs, her breathing eventually returned to normal and we were able to continue with our plans for the rest of the day. In hindsight, I think I should have administered the Epipen. She had 2 body systems reacting: skin and respiratory. Her symptoms were responsive to treatment but only temporarily; breathing difficulties resumed within a few minutes of administering albuterol. I did not have the proper equipment to be able to determine other warning signs, such as blood pressure dropping. I am grateful that Sophie pulled through—we were certainly blessed—and given another similar situation, I would just give her the Epipen and go to the hospital.
Knowing that pecans are a favorite of basically everyone in our family, my husband and I decided to try pecans first. On an afternoon when we were both home, we gave Sophie one pecan half. She chewed and we she began to swallow, she said, “My mouth is burning!” I immediately gave her a double dose of Benadryl. Within 5 minutes, she had huge welts following her lymph track and she was struggling to breathe. I guessed that we just needed to help her breathing until the Benadryl took effect (usually about 20 minutes). Based on that we decided to administer her inhaler and followed up a few minutes later with a nebulizer treatment.
After a few ups and downs, her breathing eventually returned to normal and we were able to continue with our plans for the rest of the day. In hindsight, I think I should have administered the Epipen. She had 2 body systems reacting: skin and respiratory. Her symptoms were responsive to treatment but only temporarily; breathing difficulties resumed within a few minutes of administering albuterol. I did not have the proper equipment to be able to determine other warning signs, such as blood pressure dropping. I am grateful that Sophie pulled through—we were certainly blessed—and given another similar situation, I would just give her the Epipen and go to the hospital.
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